Skip Navigation


Journal of Public Health Advance Access originally published online on March 23, 2006
Journal of Public Health 2006 28(2):148-156; doi:10.1093/pubmed/fdi087
This Article
Right arrow Full Text Freely available
Right arrow FREE Full Text (PDF) Freely available
Right arrow An erratum has been published
Right arrow All Versions of this Article:
28/2/148    most recent
fdi087v1
Right arrow Alert me when this article is cited
Right arrow Alert me if a correction is posted
Services
Right arrow Email this article to a friend
Right arrow Similar articles in this journal
Right arrow Similar articles in ISI Web of Science
Right arrow Similar articles in PubMed
Right arrow Alert me to new issues of the journal
Right arrow Add to My Personal Archive
Right arrow Download to citation manager
Right arrow Search for citing articles in:
ISI Web of Science (8)
Right arrowRequest Permissions
Right arrow Disclaimer
Google Scholar
Right arrow Articles by Surman, G.
Right arrow Articles by Platt, M. J.
Right arrow Search for Related Content
PubMed
Right arrow PubMed Citation
Right arrow Articles by Surman, G.
Right arrow Articles by Platt, M. J.
Social Bookmarking
Add to CiteULike   Add to Connotea   Add to Del.icio.us  
What's this?

© The Author 2006, Published by Oxford University Press on behalf of Faculty of Public Health. All rights reserved.

UKCP: a collaborative network of cerebral palsy registers in the United Kingdom



Geraldine Surman, Researcher1

Sandra Bonellie, Statistics Lecturer2

James Chalmers, Consultant in Public Health Medicine3

Allan Colver, Reader in Community Child Health4

Helen Dolk, Professor of Epidemiology and Health Services Research5

Karla Hemming, Statistics Research Fellow6

Andy King, Computer programmer1

Jennifer J. Kurinczuk, Consultant Clinical Epidemiologist1

Jackie Parkes, Senior Lecturer7

Mary Jane Platt, Senior Lecturer in Public Health Medicine8
1 National Perinatal Epidemiology Unit, University of Oxford, Old Road Campus, Headington, Oxford OX3 7LF, UK
2 Applied Statistics Group, Dept of Mathematics, Merchiston, Napier University, 10 Colinton Rd, Edinburgh EH10 5DT, UK
3 Information and Statistics Division, Gyle Square, South Gyle Crescent, Edinburgh EH12 9ED, UK
4 University of Newcastle upon Tyne, Sir James Spence Institute, Royal Victoria Infirmary, Queen Victoria Rd, Newcastle-upon-Tyne NE1 4LP, UK
5 Room 1F08 Faculty of Life and Health Sciences, University of Ulster at Jordanstown, Shore Rd, Newtownabbey, Co. Antrim BT37 0QB, UK
6 University of Warwick, Coventry, UK
7 NICPR, Room 1.36 Mulhouse Bldg, The Queen’s University of Belfast, Institute of Clinical Sciences, Belfast BT12 6BJ, UK
8 Division of Public Health, School of Population, Community and Behavioural Sciences, University of Liverpool, Liverpool, UK

Address correspondence to Geraldine Surman, E-mail: geraldine.surman{at}npeu.ox.ac.uk

Cerebral palsy (CP) is a relatively rare condition with enormous social and financial impact. Information about CP is not routinely collected in the United Kingdom. We have pooled non-identifiable data from the five currently active UK CP registers to form the UKCP database: birth years 1960–1997. This article describes the rationale behind this collaboration and the creation of the database. Data about 6910 children with CP are currently held. The mean annual prevalence rate was 2.0 per 1000 live births for birth years 1986–1996. Where type is known, 91 per cent have spastic CP. Where data are available, nearly one-third of children have severely impaired lower limb function, and nearly a quarter have severely impaired upper limb function. As well as describing the range and complexity of motor and associated impairments, the pooled data from the UKCP database provide a platform for studies of aetiology, long-term outcomes, participation and service needs. The UKCP database is an important national resource for the surveillance of CP and the study of its epidemiology in the United Kingdom.

Keywords: cerebral palsy, collaborative research, epidemiology, UKCP


Add to CiteULike CiteULike   Add to Connotea Connotea   Add to Del.icio.us Del.icio.us    What's this?




Disclaimer: Please note that abstracts for content published before 1996 were created through digital scanning and may therefore not exactly replicate the text of the original print issues. All efforts have been made to ensure accuracy, but the Publisher will not be held responsible for any remaining inaccuracies. If you require any further clarification, please contact our Customer Services Department.